hi !

Thank you for respons.
What gave me some optimism, was that this doctor is an experienced surgeon, who has done ETS for years.
Seems like he has learned something along the road.
I do not know if he has given this diagnose to other ETS patients as well.

Hopefully it could be the beginning of a trend, that gives ETS patients a higher status( it is allowed to hopeimage)


Presented at the annual general meeting of the British Association ...
presentation of postsympathectomy syndrome. Lumbar sympathectomy is used for the management of. peripheral vascular disease and painful conditions of the ...
doi.wiley.com/10.1002/ca.980030310 - Lignende sider
av J NANCHAHAL - 1990

http://www3.interscience....act?CRETRY=1&SRETRY=0

I found this when I searched on Google. It is not possible to se the report, so we do not know what was said.
But it seems like this syndrom has been discussed i 1990, at the time when Claes started his ETS carrier.
It is 18 years ago, and I find it strange that the syndrome is not used later on.

All ETS surgeons knows that a certain % of all ETS patients end up with severe side effects, so severe that their life gets ruined and they regret the surgery. The need of a medical description/ diagnose of this patient group is huge. So why are the patients so ignored?

If the damage on the sympathetc trunk had been caused by a virus or a bacterial, the diagnose had been there years ago.
I can not fin any other reason than that the surgeons do not want to have any diagnose connected to ETS.

Kari