sbouk99,

I have the cold right hand syndrome. Most of the doctors I have seen see no problem with it or link it to ets. Untill about a year ago. I went to go see a wilson's temperature syndrome specialist. They specialize in thyroid dysfunction when t3/t4 levels might seem to be normal. Basically they help with low body temperature's. I told him about my right cold hand, non sweating right part of my head, Right testical filled with fluid after cardio, right leg edema. He told me straight out that the whole right side of my body seemed to have sympathetic denervation. I am like why don't the doctor's tell me that. He laughed and said why would they???

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