I'm not really sure what induces it...The Xanax would probably help for interviews and stuff, but I don't want to risk becoming dependent on a drug.
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whatdoido18 |
Re: to whatdoido | #21 | ||
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I haven't tried Xanax yet, but my HH is also induced from physical activity, Usually for heat loss sweating, I'll start with my hands first--sometimes my head and underarms, which seems normal.
I'm not really sure what induces it...The Xanax would probably help for interviews and stuff, but I don't want to risk becoming dependent on a drug. |
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whatdoido18 |
Re: to whatdoido | #22 | ||
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Just FYI for people interested, I'm trying the Apple Cider Vinegar with Raw Honey thing that Ariella was talking about.
I'll let you all know how that "calms" my nervous system. D |
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Dripping Silver |
Re: Considering ETS? Please Read | #23 | ||
Quote: Yes, I agree, that's a valid point. But I want you to consider this....you were willing to permanently damage your nervous system, in spite of all the side effects you now know about. Take a look at the diagram I've put a link to. Look at all the bodily functions that are dependent on the very nerves you want to have cut. You can always stop taking a medicine if you don't like the side effects or are afraid of being dependent on it...any doctor will help you with that. What happens if you don't like the side effects from ETS? Once you cut those nerves, that's it. There's no going back. Link to Autonomic System Diagram I just want you to stop and think. ETS will still be around. If you decide later that you want to take the gamble, there'll always be an ETS surgeon willing to do the job. |
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whatdoido18 |
Re: Considering ETS? Please Read | #24 | ||
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Hey Dripping,
I agree fully with what you've said. Truth is, I'm about 95% certain that I won't be doing an ETS anytime soon. "Coincidentally", today, after talking about the prayer thing yesterday, one of my mom's friends calls me, because "she was praying and kept thinking about me," and tells me she wanted to take me to this pastor that was in for a few days to pray for me. This was really weird so I gave it a listen. I haven't worked up the courage to get prayed over yet, b/c it scares me... I think I should give this a try though. Hopefully the above didn't sound weird, but believe me, I would be the last one to believe in God (after 18 years of going to church and growing up going). I basically just starting questioning the institution as a whole. Without my sister telling me all her stories, I don't think I'd give God half a ear. I thank everyone on this board though, and after thinking about it, I don't think I want to mess up how my body works to stop my sweating. I want to do it the hard way, and I also need to suck it up and be positive. D |
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Dripping Silver |
Re: Considering ETS? Please Read | #25 | ||
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You're welcome to continue asking questions and we'll try to help if we can. Unlike the surgeons, we have nothing to sell and our only interest is to try and give you the best information that we can.
I don't know about the prayer thing, but I don't think it can do any harm to give it a try. Carole |
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whatdoido18 |
Re: Considering ETS? Please Read | #26 | ||
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Haha, yea.. that's how i feel about it, too. But my sister is the last person who would lie to me about this and she knows how much I question everything..
I'll be more happy knowing and realizing "god" actually exists than fixing my sweating problems. Also, I'm so glad I found this site and that other wikipedia site. ETS really does suck. I read some stories and damn, your body gets all f*ed up after this. If i ever see garza in a third world country and I have a weapon, I'm gonna rob him and kill him. I love people and am a realist and I can't believe ppl who know about the side effects would do this to someone for a couple thousand dollars. I definitely dont want ETS anymore. I'm gonna have to focus on being positive instead. Thanks Carole. What's your story btw? Did you have ETS ? |
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Dripping Silver |
Re: Considering ETS? Please Read | #27 | ||
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I knew it!!! You don't pay attention.
I told you in a PM that I didn't have ETS even though I started this forum. I still have hyperhidrosis...head/face sweat and body sweat lots of times. My hands are now dry because I take an antidepressent and Xananx...very low doses of each Carole |
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whatdoido18 |
Re: Considering ETS? Please Read | #28 | ||
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woohh..I think you should fedex me some xanax.. I'm too lazy to go out and pay 20 bucks for a prescription.. hah
You should try the honey and apple cider thing. also try wheat grass. swimming is very calming as well, I usually don't ever sweat after 15 laps ina pool... but after the shower, the chlorine makes the sweat want to come out. |
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alvinsduckie |
Re: Considering ETS? Please Read | #29 | ||
Quote: theres another interesting idea...some people said they sweat less from exposure to chlorine. some have found relief swimming in salt water. (altho with all the gunk in the gulf of mexico..I'd be afraid to swim in it at all) eh..who knows, just proves what works for one may not work for another. keep trying =) hopefully you find something that works
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Arlopilot |
Considering having ETS? | #30 | ||
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Since my surgery 8yrs ago I have finally gone into mental therapy...and guess what I found out...there is nothing wrong with sweating or blushing, even if its
all the time! I believe that if someone is seriously considering surgery they need to get over any shame they may have around it, take charge and go see a
therapist. I fucked up my health and I am paying for it. All doctors who perform this surgery should require the patient to undergo a few weeks of CB or
traditional therapy before making any decisions...but this would kill off their business. The therapy costs a lot less than the surgery and it really does
work.
Take my advise and learn (from a professional) its ok to be who you are. Believe me once the stress is gone you will not be worried about sweating or blushing! FYI: I just met a guy who has a disfigured face, and one arm. He happily works at the airport interfacing with strangers all day..the last thing he is worried about is sweating or blushing. Hope this helps anyone thinking of having the surgery. |
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AFontane |
#31 | |||
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Hello Arlopilot,
How does one not worry about sweating and/or blushing when it has been something very real, causing limitations? I don't mean to sound stupid or pitiful. Happy Holidays Everyone!! |
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Arlopilot |
#32 | |||
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Hi AFontane,
I believe that it is too difficult to be reasoned or rationalized out by ones self. I have tried to do that for many years with no real progress. I was brought up as a tough athletic guy who attacked my problems and scoffed at "head doctors". I can offer that with the help of a good therapist you could re-frame the way your mind looks at situations where you may feel overwhelmed and worried about sweating or blushing. This part of the therapy took a few months to complete but I saw real progress within a few weeks. The biggest part of the work was also to give myself a break, stop pushing so hard and just relax. A question that was posed to me a long time ago was; is it more important to feel relaxed and comfortable or to "look" like it? The real root of my problem was that I was overly concerned about what others..especially strangers.. thought. I can only speak for myself because others may not feel this describes their issues. What I believe is really sad is these ETS doctors realize this and are preying on us when we are at our weakest. They're solution just adds more problems to what can be overcome by other solutions. In order of importance I believe therapy is number one then try anything else that is not permanent! By the way, your questions are not stupid or pitiful in any way. I used to feel that way when I would ask questions. Best, Arlopilot |
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csmess |
#33 | |||
Arlopilot wrote: Bingo. Just like the surgeons that do nose jobs and boob jobs, ETS surgeons exploit the insecurities people develop over a physiologically benign problem.
They fraudulently tell patients they have a "disease" for which there is a "cure" when, in fact, it's just cosmetic surgery for a
benign condition. Sweating excessively in a particularly location is annoying and embarrassing, but it's not a disease.
In addition, they exploit our ignorance regarding a rather obscure area of human neuroanatomy and neurophysiology. When the tell patients that they will be cutting (or clamping) the "little nerve that controls palm sweating", the vast majority of people have no idea that that statement is complete nonsense. So, in my view, hyperhidrosis sufferers are exploited on two levels by surgeons. Recently, when I've attempted to talk people out of the surgery, I've tried to use the same reasoning you have presented here. That is, the problem
is not that you sweat too much, but that you are overly concerned with the opinions of others. Don't try to abolish the physical manifestations of anxiety
by having some greed-driven surgeon mangle you nervous system. Go after the root cause: the anxiety. That anxiety results from our concern over how we are
perceived by others. It's a phobia. Phobias can be treated with psychotherapy and should never be treated with nerve surgery.
Last Edited By: csmess 12/10/07 12:43 AM.
Edited 3 times.
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Arlopilot |
#34 | |||
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very well said!
Thanks |
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Kayinnn |
#35 | |||
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Hi there...
It's the most negative forum about ETS i have ever read. ;-] I'm from Europe, Poland (sorry for my english)...umm I have HH, tried almost everything (doesn't work at all) and now i consider to have ETS by a clamping... Here is my question. You all had really bad luck... because this side effects. (If I will look into statistics 1 of 50 people have it) So... Those side effects, CS and everything which make you suffer now... appear immediately after sympathectomy sugery? (or maybe about some months/years?) If you had it instanly after, why you just don't remove clamps? (or if u don't have it, WHY do u made a cut instead of clamb?) I can't get it. :P You know... I talked with many people which are truly happy about effects of ETS. They have now 'second life' without sweating. In my opinion you had really bad luck about this surgery, cause... yeah ETS is a gamble, but you could limit that risk. The same you are egoistics if you want to get ETS banned. You were not gonna make it but much more people does. Remember that. |
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1slip75 |
#36 | |||
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Dear ignorant Kayinnn,
The reason this forum is negative is because all of us have experienced not only the side effects you think are involved but many that were covered up and not listed by doctors. And by NO means did we have BAD LUCK, it's because doctors don't inform you of every side effect we are experiencing. Go ahead and have ETS and we will see ya here in the fall. You are very ignorant about this procedure and apparently life in general, and definately do not come on here and tell us we are egotistical, we have been damaged by this surgery, and we deserve not only answers but truthful literature on the dangers of ETS. So FUCK OFF. Charlie |
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Dripping Silver |
#37 | |||
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Hello Kayinnn,
No, the CS and other side effects don't always show up immediately. They can appear a month, six months, a year or even ten years later. Even if they show up immediately, surgeons have been known to advise patients that they must wait a little longer because the side effects could go away. Some surgeons have even denied that the side effects are due to ETS. By getting clamps there is no guarantee that the ETS side effects will be reversed. I would advise you to spend some time reading our Reversal Section. There are many stories there of people who had the clamps out within a very short amount of time yet find little or no improvement. You didn't say what parts of your body were being affected by hyperhidrosis. What remedies have you tried that didn't work? There is no sure way of lessening the risk of ETS. It will always be a gamble. Carole |
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alvinsduckie |
#38 | |||
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Kayinnn,
I find this most interesting... on your profile there is a location that takes me to DuBois Illinois. and also southern Illinois university...they have a cardiothoracic area that practices ETS http://www.siumed.edu/surgery/cardiothoracic/hyperhidrosis.html |
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Kayinnn |
#39 | |||
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1slip75 my nervous friend...
" it's because doctors don't inform you of every side effect we are experiencing. " umented The reason is simple. Side effects that you have and you talk about are not documented. And there aren't extist facts like this. I think doctors told you only that what he knows from statistics of ETS and maybe his own experiencise. " So FUCK OFF. Charlie " Oh, you are too pleasant... " You didn't say what parts of your body were being affected by hyperhidrosis. What remedies have you tried that didn't work? " Umm, general almost everywhere... but the most: hands, feets and armpits. I have tried lots of antiperspirants, anti-sweating drugs, ionophoresis... (botox is too expensive for me and short-time effective) I understand your angry but you should realize that ineed you are margin of people with SUCH a problems. Besides what's the diffrent... life with HH or with CS - both are fuc*ed-up. |
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csmess |
#40 | |||
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Kaylinnn,
If you do your own detailed research on ETS outcomes rather than just believing the statistics quoted by the surgeons selling this surgery, you will find that documented evidence shows that, over the long term, the rate of regret for the surgery is very high. Several long-term studies show one out of every three patients regret the surgery. Furthermore, many studies classify patients who are ambivalent about their outcome amongst the satisfied. Over the long-term, the percentage of completely satisfied patients drops below fifty percent in these studies. So, I don't know where you got your "1 of 50 people" get bad side effects statistic. Even the short term satisfaction surveys show much higher incidents of severe side effects. Removal of the clamps, by the way, does not reverse the effects of the surgery. If taken out very soon after surgery, some patients see a moderation of side effects, but nothing more. ETS is not reversible and you would be a fool to believe any doctor who makes that claim. Are there people who are satisfied with the surgery? Sure, there are. And, if you would like to believe that your chances of regretting the surgery is 1 in 50, then, by all means, go ahead and get the surgery. However, if you going to post on this forum, you should back up those statistics with a source. Also, I will ask you to refrain from making derogertory remarks, such as calling our members "egotists". Should you continue to make such remarks, you will not be allowed to continue posting here. Good luck with your finding a solution to your hyperhidrosis problems. |
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