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surfsider1 |
#81 | |||
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oh so do u think these doctors are aware of the ets that is performed here in the states that is similiar. is this just there own version of it? do you think
the u.s. will start using and advertising this type of procedure instead?
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Dripping Silver |
#82 | |||
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If there's enough people believing it's a better method and are willing to undergo a yet again revoluntionary but unproven procedure, then there's
a good chance some doctor will start using that method in the US. All that's necessary is to put up a website, quote some high satisfaction rates, a few
ass kissing testimonials, and there will be some people who will buy into that particular Field of Dreams.
Last Edited By: Dripping Silver 06/14/08 12:08 AM.
Edited 1 time.
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surfsider1 |
#83 | |||
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oh, well from my own perspective this procedure seems a lot safer and more practical in the sense of performing surgery under local anaesthesia as opposed to
an hour long operation under general anaesthesia, but yes the intention is the same which is to destroy specific t -nerves. I just wish there was a way to
compare ets patient satisfaction to this new procdure. But I have a general question for you guys. Since ets and this new procedure involve destroying specific
nerves to cure sweating in the hands and or armpits, do yout think the medical community is approaching this the wrong way? Doesn't the cure rest within
what can be done to the specific sweat glands rather than the nerves that control a number of things. Is hyperhidrosis a definite malfunction of specific
nerves or is it something deeper in our brains and genetic coding or perhaps just a problem on the surface with our glands. This condition obviously exsited
since the beginning of mankind but we probably weren't at all concerned with it until we became more social and civilized. I think the medical community
should concentrate their efforts on other less invasive therapies and also gene research with regards to what gene causes the excessive sweating because it
sounds like attacking the nerves to cure this problem is only creating controversy and misleading the public. Im also mislead about the definiton of
hyperhidrosis as a condition, who determines what is excessive sweating? each individual should determine their own condition and label it depending on how it
effects them personally.
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1slip75 |
#84 | |||
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Surf, I have been reading your posts and I need to tell you a few things. As to your last inquisition, no one is going to know that. No one. If they did
we wouldn't be here perhaps. Maybe there would be a better method. But you are asking questions that aren't answerable, beside the answer to the
question of ETS. You are missing what people have been telling you. The damage done by sympathectomy cannot be altered by other methods as say injection to
the nerve. You are kidding yourself, as it is the nature of the destruction of the nerve and nerves around the T chain that create all of our problems. Your
desperation to the effects of sympathectomy are only going to lead you into bad decision making. And yes when reading your posts there is a heavy desperation
tone throughout. I was the same before my operation, the last three years at the start of the year I would tell myself I cannot go another summer sweating
like this. I have abused xanax and alcohol to cover my feeling of HH in the past as no one ever seemed to understand my sweating. Not doctors, not
dermatologists, not counselors. I didn't find this site prior to my surgery, but anyone who has read the stories here and who still goes through with ETS
is a fool, a complete fool. This site has been the best thing for me as far as therapy. I encourage you, no urge you to switch gears away from ETS and begin
working on some acceptance of your problem. This is not easy by no means but sites like this where others experience the same as you is the starting point to
your improved life. You need to endlessly search for a qualified dermatologist or doctor to help you try medications. With that you need to inquire to
hyperhidrosis sufferers(most of us here are only ETS victims now) to find out tricks and practical methods of reducing your sweating. And that is also
important, chances are you will never completely stop sweating. That is what I was shooting for with ETS, and like you I was desperate and now my life is even
less satisfying then before. I am having to learn new ways of dealing with my ETS complications and it is very stressful. To have ETS you will only be
exchanging problems and probably adding a few as most of us here experience. ETS is not the answer, only another question. So don't set yourself up
thinking your sweating will be gone because of ETS. Instead of your hands you will be walking around with a sweaty back and ass.
So please do not continue to wear yourself out trying to figure out the puzzle of ETS, as its a puzzle with a piece missing so you will never get it done. And again your desperation is going to lead you down the wrong path, you need to jump course and start helping your HH through other means. And the members here have offered you all they can as far as info on ETS. There is no other place you can go to find such information. So listen as up, til now you haven't been listening only shutting out what you don't want to hear. Work on you HH and leave ETS alone, because that's what it will do to you. It will leave you alone to battle the damage it has done. Charlie
Last Edited By: 1slip75 06/15/08 06:42 AM.
Edited 1 time.
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surfsider1 |
#85 | |||
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Thanks for the advice Charlie. I am trying my best to deal with my own condition. I'm still unaware of how my own condition compares with others who have
hh though since i've never really seen or talked to anyone in person with the same problem. For example i went to my physical therapist today for a
shoulder injury and i met her for the first time my hands weren't sweaty but i was worried they were gonna sweat when i shook her hand, then as we did some
excersices my hands started to sweat maybe because i was nervous but still they shouldnt sweat like they did but as I shook her hand again before leaving it
wasn't sweaty. So my condition is weird, brought on a lot by emotion and anxiety/stress and heat. I never sweat when it's like 60 out or witha nice
breeze but it still something i'm always thinking about so i must have hyperhidrosis. Another thing i notice is if i wash my hands with warm water i wont
have to worry about my hands sweating for a least like 20 minutes then i start worrying again even if they dont' sweat right away, it makes me seem insane.
I know there are several things to try before even thinking about ets and its only something i would consider if ive tried ABSOLUTELY everything to make myself
content with my condition and it has failed but Im trying my best to accept it though its hard. I just dont' wanna worry about it or think about it but i
always find myself researching and looking on websites for info about it. I'll continue learning and accepting who i am and maybe it will deminish with
time or with other non surgical methods.
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1slip75 |
#86 | |||
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Surf, I don't always intend to be combative of others here, but I wanted to be straight with you no sugar coating about ETS. I never had
anything but what I would consider normal hand sweating, but all through middle school and high school I lived with having huge wet stains under my arms. I
had many friends and as I got older I tried to enjoy a few more things as I could mask it a little better but still not where I didn't think about it as
soon as I got up in the morning. By the time I got to school you could already see sweat through the two shirts I would wear. I became less involved in the
actual school aspect, couldn't raise my hand to answer a question and when called to the board I would race to the side so I could be turned so that my
classmates didn't see. Along with my sweat I smelled. I went from a leader in grade school, in advanced classes to a recluse failing and with mainly
C's. I hated it. Girls I wanted to date I couldn't because of fear of what they would say once they got close to me, because if you didn't have
me in class or something you may not have known I sweat, but to me it seemed everybody would know at some point. I had a couple of girlfriends in my senior
year, but not long term. I was refered to as gross, stinky and cannot begin to tell you some of the things I heard from people because it makes me feel so
ashamed still today. And to top it all of in my later teens and early 20's I began having severe facial sweating as well. This is the area I had surgery
for because it ran down my face in conditions it shouldn't have. Now I endless dream of going back and reliving my life again without those problems, and
I fear the future because of the same and increased problems I have now due to ETS. The same was in college, but different, I could take breaks between
classes and go home and change shirts but I still worried endlessly about what if a girl I like finds out that. Or what if a girl approaches me and I have to
turn her down because the first things that pops into my mind is her asking me to go somewhere where it is hot and I start to profusely sweat as usual.
Hyperhidrosis is such a mind game, this is why I need you to and you need you to begin to learn to think differently. I think the best way is to come clean to
someone and say man I have this hand sweating problem that I hate and it bothers me. More then likely you friend may say I haven't noticed, whether they
are being nice or haven't actually noticed which is often the case. We are our biggest critic. But let me tell you about the release of stress you have
when doing that very thing. I have told alot of my friends and family about my problem now that I have had the surgery and more things have gone wrong. I
don't have that burden of worrying if they notice me sweating, because I know they know I sweat. And it took me til age 26 before I ever told anyone about
it, and he was my counselor and a good guy. The only person who really comprehended me. There will be a person out there for you like that, may take some
looking. If you go to a doctor or counselor or nurse or anything and feel as if they do not have your best interest in mind or seem to understand what you are
going through, then don't go back. I have walked out of doctors offices because of the way they have treated me. It is your life and your health and its
a business to them so treat it like one. If you bought a bad product from a store or a cashier was rude would you not say something or no longer shop there,
same with docs. I tell you this because there are a lot of ignorant medical professionals out there. I have about six life long health conditions beside my
ETS problems and I have been to countless doctors and specialist and many of them have been a negative impact on my life. Example being I submitted a urine
sample for tests being done on my kidneys, and the doctors told me I was lying about having done my sample right because they had never seen anybody have a low
volume that way over a 24hr period. They accused me of lying, and that is absurd. So good doctors are like finding a four leaf clover, you have to look for
awhile. Doing this and finding someone who understands your problem will help with you dealing with it. You will never stop sweating more then likely,
atleast not in the manner you want to so by taking steps to alleviate stress and learning ways to help and cope then you can live a happy life. If not you
will live my life, one in ruin and defeat. Learn to accept and communicate about your problems no matter how embarrasing they are. Seek out what you need and
be hesitant to have a surgery which does not literally save your life.
Charlie
Last Edited By: 1slip75 06/16/08 12:13 PM.
Edited 1 time.
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surfsider1 |
#87 | |||
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Thanks again Charlie, i've talked to my parents about it and they know i have it and my sister does a little bit too and i hope it doesnt get worse for
her. My biggest concern is containing it and managing it with how it is currently. On a lot of surgeons websites it says that sweaty hands is a problem that
occurs in adolescence or before and gets worse into late teenage years and early adulthood. Well I'm now 21 and it got worse from the time i was about 17
until now and I'm just wondering if this is as severe as its going to get for the rest of my life cus i can deal with it, i just hope it doesnt get worse.
do any of you know when it stoped progressing in severity at what age?
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surfsider1 |
#88 | |||
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Alright guys so i just had a consultation with Dr. Fritz Baumgartner in Fountain Valley he runs a website curesweatypalms.com He evaluated my condition and
said I was about a 6 or 7 on a scale of 1 to 10 for sweaty hands. This is the main surgery he performs and he cuts the T2 T3. I asked him why doctors have so
many differnent ways of performing the sympathectamy at differnt levels. He told me that every surgeon has there reasons for doing this and that he does his
method because it's quick safe and people experience less compensatory sweating. He also was well aware that the procedure is risky and has side effects
and told me to thorougly think through it and go through all other possible options before considering the surgery. What he did was make me hold my hands
together for like 20 minutes so they collect the most sweat possible and then he took a picture of it to show to the insurance company if i were to go through
with the surgery. He told me the question i have to ask myself is if im willing to trade sweaty hands for a possibility of a sweaty back or other parts of the
body. He also confirmed that you will be inhibited from sweating above the nipple line. He was very honest and had no intention of telling me to go for it. He
didnt know I was a canditate till he asked me a series of questions that had to do with how if effected me. Afterwards he wrote me a prescription for Robinul
and told me to think about it and pray since he's a devout Catholic. He also said the nerves effect heart rate somewhat but that hasn't been a problem
in the patients he's treated. I doubt that this Robinul will work and im scared to try it because ive heard of the side effects? has anyone had success
with this? I am going to try it i guess and stop when the side effects kick in. I wanted to get info from a popular surgeon who performs this on a daily basis
and he was very helpful and I will exaust all my other options befor considering this surgery but at least i know that all these doctors who perform this
surgery arn't evil and are willing to disclous the possible side effects.
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1slip75 |
#89 | |||
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I wish you would read over what you wrote. You are afraid to take a medicine that you can discontinue but are still flirting with the devastation of
ETS??????????????????????????????????? And the clamping 50-50 reversal is bullshit, I was clamped and then had them removed. Still in the same ETS boat and
I think I see your speed boat in the distance heading right toward me. And ofcourse hes nice, maybe he is in general a good type person. But the info given to
you about ETS from him is like all the rest. You seem to still think that the only problem after ETS is Compensatory sweating. And trust me the lower heart
rate will affect you in some way. And as a side note the first thing I would look for with the Robinul is an extremely dry mouth and tongue, I am in my 6th
day of tongue recovery as it got toasted by taking a higher dose of Robinul. I would recommend the .5mg.
And you did not listen to one word I or anyone else said to you about this surgery if you are still trying to convince yourself that you and ONLY YOU will be immune to the sympathetic damage. I have no more advice for you as you are digging your own grave. |
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1slip75 |
#90 | |||
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And wonder why he would cut your T2 and T3 when it is said by ALL surgeons the T4 is responsible for hand sweating. Not to mention you would be cut... Fucking
Ridiculous
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Dripping Silver |
#91 | |||
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Ditto what Charlie said!
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surfsider1 |
#92 | |||
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i know you guys are very upset and i don't blame you, but i would just like to see more negative comments or testimonials from people who had ets for
PALMER hyperhidrosis exclusively cus it doesn't seem that many people who had that have experienced extreme side effects. Maybe i need to see a
phsychologist about this problem but its driving me up the wall not getting one sided answers, i don't know who to believe anymore. bottom line is we are
all individuals who want to be happy and we all have problems and if there is something offered to help problems that people have found beneficial then im
going to do all i can to find the truth and experiment with non surgical options before i decide ets. i dont know but i think about this condition every waking
moment it's bad and it needs to stop. can anyone direct me to a reviewed medical survey detailing the functioin of every T nerve and the outcome of ets for
palmar hyperhidrosis. i requested to speak to patients of Dr. Baumgartner and they're sending me a list of people to talk to. for me i would much rather
sweat on my back or chest then my hands. i will try this Robinul but i dont want to be dried out like a raisin in the sun. i feel helpless with this. has
anyone had success with Botox or Iontophersis for sweaty palms?
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jinnjucz110 |
#93 | |||
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to Surfsider,.
hello, i had ETS done back in 03 for PALMER HH and believe me buddy if you think that the patients on here that underwent ETS for palmer HH do not suffer many sideeffects,.. you are flat wrong! i suffer from nearly every sideeffect mentioned on this forum including SEVERE pain throughout my body! iam literally living in a nightmare!24/7 let me tell you a little about the thoratic level sympathetic nerve, it does not just effect sweat patterns but effects mearly hundreds of things in the human anatomy,.. including paralizes of the skin to emotion in the brain,.. put it like this, iam am now emotionless because of this bullshit ass surgery, every time i hear a song that brings back memories i NO longer care or when i watch a movie , iam NOT interested .. i have no interest in ANYTHING ... this surgery has really screwed me! i have rather be in prison living in a normal body for life than living with the sideeffects that i know suffer from in the real free world .. so sit back an really think about what its worth!i hate coming on this forum trying to talk people out of this procedure an then see them right back on here after they have had it done sobing!.. iam just here to help and let others understand its just not trading hand sweat for sweating on the lower limbs! NOWAY... iam in so much pain that i can not even work anymore or sleep!.. SO THINK LONG AN HARD !!!!!!!!!!!!!! THANKS JIN |
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surfsider1 |
#94 | |||
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Thanks for the heads up Jin. As you know having palmar hh is very frustrating and its hard for me to imagine what a lot of ppl are going through post ETS. My
particular case of hh is hands and feet. i play tennis for Chapman University in Orange Ca which doesnt help my feet out very much lol with the sweating
issues. i've talked to a few doctors about this condition, one of whom performs ets. he told me to expect compensatory sweating and that there is no way to
predict who will get more severe compensatory sweating post op. I hate hh though because im always thinking about it, i think if i stayed busy more i would
think less about if my hands are gonna sweat or are they sweating. It seems the the least amount of sweat bothers me. I've been using this sweat-stop
antipersperant for my hands and feet and it works alright for my hands but my finger tips still sweat and my feet still sweat a lot too. this stupid condition
has made me so self concious its driving me mad. i think about if girls will care or not about sweaty hands or feet and it's stupid. That's why im
frustrated with how this condition is being ignored greatly and that the only advertised 'cure' sounds more like a trade-off. This was never a problem
for me during high school although i did notice my hands would sweat from time to time especially while playing video games, i didnt care as much or get
bothered by it then as i do now at age 21. I'm wondering if this condition will level off so to speak since im through adolescence and stay how it is, cus
i really hope it wont get any worse. I can't wait to try Iontopheresis but i can't right now since i have a metal chest implant because i had a deep
funnel chest that got worse when i grew taller. I'm currently 6'3 and only like 147 pounds so me being underweight doesnt help with my hyperhidrosis at
all. I have an anxiety about my hh and about my body image in general which is an ongoing battle. I could go on forever but thanks for letting me know about
ets and its dangers, im well aware of them and wont consider that route until i've completely exausted all other alternative treatments.
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girlmom3 |
#95 | |||
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You can bet that tennis will no longer be an option for you of you have ETS. You will not just sweat on your back and chest. You will literllay soak through
your clothes from the chest down, chest, back,GROIN, thighs, even your calves and shins. My armpits sweat even more now than they did before and your feet will
still sweat, maybe eve worse than they do now. It's not just a little back sweat my friend, it is gallons more than your feet and hands sweat now and it is
everything but your hands. Not a good trade off. Not to mention all of the health risks you will have to live with for the rest of your life that you don't
have now.
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Aubrey |
#96 | |||
Maybe i need to see a phsychologist about this problem but its driving me up the wall not getting one sided answers, i don't know who to believe anymore.If you have a tendency to obsess and it does seem that you may, then talking to a psychologist is a sensible idea. If you obsess from morning till night about what I would consider mild sweaty palms, what convinces you that you won't obsess even more over CS of you body, or heat intolerance and gustatory sweating? If and when you get any or all of these, you will have a new thing or things to obsess about, maybe 3 or more instead of 1. It is possible that your problem is obessing more than sweating. If you get CS you will have to use medications because almost nothing else works, so why not try them now? You won't know till you try unless you would prefer just to have this problem to obsess about in liew of another problem which is possible to present itself if/when you get palm sweat under control. If you are thinking about sweaty hands from morning till night even when they aren't sweating, then I think your problem may be more emotionally driven than physically driven. |
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surfsider1 |
#97 | |||
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Yes Aubrey I think you're right. Currently my Palmar and Plantar HH is what i call moderate. I could go half the day before my feet sweat at all but
I'm always doing stupid stuff like checking to see if they're sweating same thing with my hands but my hands stay drier than my feet more often
probably because I'm able to treat them more at night with antipersperant creams. I just want to try iontophoresis. It does seem that I have emotionally
induced HH. My uneasiness and lack of confidence in certain situations adds to my HH and fear of HH starting. It's like I'm just always waiting for
them to sweat and even when they do a little bit I get frustrated and it just makes things worse and heightens my anxiety. if i did have ETS you're right I
probably would have more to worry about than I do now but the only major plus side would be I wouldn't be worried about my hands which really bugs me. I
want to live in a COLD place cus when im cold hyperhidrosis rarely if ever happens. This has become my first though when I wake up in the morning and it
shouldnt' be like that especially when my condition is most likely moderate and doesn't occur all the time. That's why I'm trying to stay
occupied and focus my thoughts on things other than HH does anyone have any way to help me do this or any thoughts?
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girlmom3 |
#98 | |||
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My suggestion to you surf, would be to see a naturopath. I know a man who was pretty high up in the corporate world who had sweaty hands and feet (most often
when he had a presentation or a big mtg....) He was completely "cured" with the regular use of the supplements suggested by the naturopath, who was
able to read his eyes (called iridology) and muscle test him for exactly what his body needed. The naturopath treated his problems, not the symptoms and he
has been sweat free for several years now. When I went to this naturopath she was devestated that I had already had ETS because she was certain she could have
cured the palmar HH I had but there is absolutely nothing that can even minimize my CS now. Believe me, I've tried everything! A naturopath can actually
be much cheaper than docotrs and meds and obviously better for you.
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surfsider1 |
#99 | |||
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thanks. that sounds very interesting. do you recommend a doctor. i'll try to find one in my area. i'll try everything before ets. i have a question
though for you. since you had ETS surgery do you feel emotionally changed ? So this surgery has effected you on both mental and physical levels? I wonder how
anyone can be satisfied it it changed their emotions or there feelings of adrenaline/ overall personalities, if that is true.
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girlmom3 |
#100 | |||
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I would ask your friends if they know of a naturopath in your area or check your local Vitamin Cottage or Whole Foods store. You want one that can do iridology
and blood work.
I am not sure anyone is really satisfied 100% after ETS. It is emotionally draining, can cause sheer mental anguish, and is physically debilitating. I don't think anyone here is/can function at 100% in any area of our lives of what we were before ETS. I am so glad you are putting in so much effort to try everything else out first! Charlie even posted pics of his GS out of his care and concern for others like you. We have nothing to gain here by humbling oursleves to save others from what we suffer from. Good luck on the naturopath and keep me posted! |
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