Hi,
Do we need a post-ETS diagnosis( syndrome) ? What would the positive and negative consequences be ?
Many (all?) of us who suffer from the sympathectomy side effects, miss knowledge and understanding in the public/private health system in general.
When I try to explain to my doctor my problems and the very strange suffer I experience, his eyes get far-off. Like I lead him into a landscape he do not understand.
He get very soon quiet and smiles careful and polite to me. Again, I get the same feeling as always, he has no intentions to investigate this further or try to help me in this "strange landscape". He do not want to use any of his time to understand my special problems, he do not want to hear my story and he do not believe that my knowledge is credible. But he want me to pay when the appointment is over.
And, as always, I know I have to do this mainly by my own.
I do not want to attack the doctors in general, because they do not know, and we have nothing to give them which is simple, convincing and international.
With thousands of people having ETS all over the world, every year, there must be many who suffer from disabling side effects. And they need something which describe their problems.
ETS gives some very characteristic side-effects which almost everybody get. Then some side effects, that very many get,and besides, a lot of different other side-effects that varies from person to person.
To me it could be called a post-ETS syndrom.
Many years to go but something necessary in the future ?
In case what about the insurance companies ?
Any comments ?
Kari
Do we need a post-ETS diagnosis( syndrome) ? What would the positive and negative consequences be ?
Many (all?) of us who suffer from the sympathectomy side effects, miss knowledge and understanding in the public/private health system in general.
When I try to explain to my doctor my problems and the very strange suffer I experience, his eyes get far-off. Like I lead him into a landscape he do not understand.
He get very soon quiet and smiles careful and polite to me. Again, I get the same feeling as always, he has no intentions to investigate this further or try to help me in this "strange landscape". He do not want to use any of his time to understand my special problems, he do not want to hear my story and he do not believe that my knowledge is credible. But he want me to pay when the appointment is over.
And, as always, I know I have to do this mainly by my own.
I do not want to attack the doctors in general, because they do not know, and we have nothing to give them which is simple, convincing and international.
With thousands of people having ETS all over the world, every year, there must be many who suffer from disabling side effects. And they need something which describe their problems.
ETS gives some very characteristic side-effects which almost everybody get. Then some side effects, that very many get,and besides, a lot of different other side-effects that varies from person to person.
To me it could be called a post-ETS syndrom.
Many years to go but something necessary in the future ?
In case what about the insurance companies ?
Any comments ?
Kari
