I don't want to live any longer like this.

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Cookie	I don't want to live any longer like this.		Lead	[-]
Member Posts: 3 09/13/08 12:49 AM	Tags : None I will say that I deeply regret having a sympathetomy and it's ruined my life. Some day I'll come out and speak about this but I want everyone who reads my posts to know that this is a horrible surgery and you should never even contemplate in under any circumstances. So you sweat? Yes, it's not fun but the consequenes of this surgery can be life threatening. I would rather sweat than have cardiac arrest OR no longer be able to control my temperature. It is AWFUL! My guess is that that hyperhydrosis is caused by a chemical imbalance or hormonal shifts which CANNOT be fixed by mutilated an important nerve. This surgery should be banned every where and surgeons who perform it should be aggresively persued for malpractice. Cookie
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jinnjucz110		#1	[url]	[-]
Member Posts: 828 09/13/08 12:54 AM	hello cookie, sorry to here what you going through, iam a sufferrer as well, an yes i tottaly agree with you! this procedure needs to be stopped, at this time we are currently trying to find a way for a true reversal by the means of stem cells , take a look under the reversal section to see how far we have came , we are here already! just hang in there WE WILL BE OUT OF THIS MESS SOON!!!! THANKS JIN
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josephdarling		#2	[url]	[-]
Member Posts: 111 11/01/08 01:23 PM	I agree with you Cookie 100%. This surgery is horrible. I was never informed of the side effects and am suffering from them now. ETS effects so many aspect of your body. It messes with your heart,hormones, neurotransmitters, thermoregulation,eyes,hair,skin ect ect. It was pitched to me as a very safe minimal surgery. The more I research it the more I see how far from minial it was. I feel like my body has been violated to an extreme for a few $. If I had heard even one tenth of the real side effects I would of never had it done. We must fight the negative feeling we have and find a solution to the problem. I am desperate which effects my judgement for the worse.
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NLajoie		#3	[url]	[-]
Member Posts: 73 05/08/09 01:53 PM	I don't want to live like this any longer either.. It's getting close to summer time. The way I feel when I go outside and am soaked is not right. My back is full of acne from the sweat. I never use to sweat from my back like that. I need to keep my shirt off to stay cool, but I can't do it, unless I'm at home because of the acne.
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josephdarling		#4	[url]	[-]
Member Posts: 111 05/09/09 08:30 AM	NLajoie wrote: I don't want to live like this any longer either.. It's getting close to summer time. The way I feel when I go outside and am soaked is not right. My back is full of acne from the sweat. I never use to sweat from my back like that. I need to keep my shirt off to stay cool, but I can't do it, unless I'm at home because of the acne. nlajoie I have the same problem. I never had acne in my whole life. Im 32 years old and my back is covered because of ets. It occurs mostly around the line of innervation. I keep my shirt on all summer b/c Im embarrased about my bacne. Fucking butchers.
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WetBoy		#5	[url]	[-]
Member Posts: 87 05/15/09 06:46 AM	NLajoie wrote: I don't want to live like this any longer either.. It's getting close to summer time. The way I feel when I go outside and am soaked is not right. My back is full of acne from the sweat. I never use to sweat from my back like that. I need to keep my shirt off to stay cool, but I can't do it, unless I'm at home because of the acne. The same thing is happening to me as well and I'm 37. I sure didn't have this issue when I went through puberty (at least not on my back) so it doesn't make much sense to happen now. Thanks ETS! Fuckin' bullshit. I can't even go to the pool to cool off anymore it looks so gross. Just another lovely side-effect they don't tell you about. I can't wait for all these ETS Doctors to burn in hell...
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fabbo		#6	[url]	[-]
Member Posts: 15 05/15/09 09:00 AM	i am 21 , and lost my previous overactive libido completly... worst thing that could happen. i also sweat so hard that i had to quit 3 jobs.,my clothes are wet all over after 20 minutes of work.every day is a pain. in deep depression . fabbo Last Edited By: fabbo 05/15/09 09:05 AM. Edited 3 times.
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NLajoie		#7	[url]	[-]
Member Posts: 73 05/15/09 01:02 PM	Hang in bro. I've done some crazy stuff post ETS. I joined the Army and have been to Iraq for 27 months with this condition.. It's very uncomfortable, but I made it. Just shows that even with this condition, you can still do a lot. I don't think anyone post ETS should even be in that type of job... But hey I needed a job, and that's what it is.
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miketrismegisto		#8	[url]	[-]
Member Posts: 390 05/15/09 01:16 PM	hey men 27 monhts in that hell, more of 40 grades celsius, what you do to dont feel the sweat and the fatigue , its very hard with ets you know
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NLajoie		#9	[url]	[-]
Member Posts: 73 05/15/09 02:11 PM	miketrismegisto wrote: hey men 27 monhts in that hell, more of 40 grades celsius, what you do to dont feel the sweat and the fatigue , its very hard with ets you know It wasn't easy, and I would get headaches like crazy! Even post ETS, I stay physically active, and I think that helps... It's just I sweat a whole hell of a lot more and my clothes are drenched. I had to constantly change my clothes. Especially shirts and uniform tops. It was kind of weird when you went into my room and I had shirts hanging up to dry, but no one really noticed because everyone was sweating their asses off. The good thing is that we had Air conditions and showers. So I'd stay in the air condition as long as possible, it's absolutely the only thing that saved me. Of course the power would go off very often, so a lot of the time I was left to soak.. Bad thing about it was people think I'm anti-social because I'd be locked up in the A/C all the time. My first 12 month deployment was the worst as far as being outside in the heat with gear on. The second was a lot nicer, that I was able to work at nighttime and avoid the sun pretty much, except for when I had to eat or do physical training. I've adapted really well as far as sweating during physical work. The part that I can't adapt to is the wet feeling, and the soaked clothes. Sweating is ok but, it's not when your soaked! So everyone is drying up, and I'm still wet! As far as fatigue, I drank a lot of energy drinks.. They had stuff called "rip it's". I used to drink those whenever I wanted to get going. Else, I just stayed fatigued.. I'm auctually really fatigued writing this right now. I'm lucky to have gone during the later years of the conflict, as there were no air condition when it first started! I wouldn't wish that fate on anyone though! But I had to... I'll never fully be able to stand what ETS has done to me, and what gets me through is just taking everyday as it comes. I try to take 2 showers per day if I can and I need to have extra clothes available if I start soaking myself.. It's really though when you're working to change though! Also I make sure to drink enough water, knowing that I will be sweating more.
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smoothy boothy	I'VE HAD ENOUGH. I'M TIRED NOW.	#10	[url]	[-]
Member Posts: 71 05/16/09 07:48 AM	Hi Guys. I've had enough now, i'm tired of having to plan my days around the side effects of ets. My career, friends, self worth, and the strenghth to carry on have all gone now. I can no longer serve a purpose on this earth now as every aspect of everyday is affected by the side effects. My body is slowly shutting down unable to cope with the hundreds of side effects, i believe my life expectency is dramatically reduced, and really don't know how much longer i can put up with it to be honest. It's ok saying you have to stay strong, think positive, don't let the bastards win and all those words of wisdom! but i've tried and it doesn't ease the pain i'm affraid. You never get a restbite, or any relief, no doctor has a clue what your going on about when you try and explain your hundreds of symptoms!!! it's a living hell. An operation that was supposed to give me the freedom to become a better person has robbed me of my life. I've had enough.
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alvinsduckie		#11	[url]	[-]
Member Posts: 1405 05/16/09 10:44 AM	please hang on! many of us are in hell but stem cells are looking promising. since ETS i've lost my career,fiance, cant have kids, life SUCKS! please dont leave us...PLEASE stay ((((hugs))))
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fabbo		#12	[url]	[-]
Member Posts: 15 05/16/09 01:34 PM	Why you can't have Kids? Did Ets make you infetertile? fabbo
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chivas	smoothy	#13	[url]	[-]
Member Posts: 49 05/16/09 02:39 PM	hey man, relax you are not the only one going trhu this shit , so don't think on doing things that god might not forgive us of. I know this shit sucks but since we are many of us suffering i'm pretty sure that we ll get some help to get out of this whole mess!!!! so hang on there. PLEASE!!!!!!!
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miketrismegisto		#14	[url]	[-]
Member Posts: 390 05/16/09 02:46 PM	Fabbo i dont think this thing give inferitlity i guess when alvinsduckie said that cant have kids its because whit the side effects like sweating, fatigue, etc, its difficult to go and have datings or have social activities so without this how we can meet other persons ?? I think shes talking about this point not aout infertility. Thanks Miketrismegisto
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alvinsduckie		#15	[url]	[-]
Member Posts: 1405 05/16/09 03:19 PM	i cant have kids because I'm on a beta blocker that would cause birth defects :'( I am also pre-diabetic, which might permanently damage my kidneys. thyroid is also an issue, I cant gain any more weight. since january I have lost 20 pounds. i have to keep on until i lose the other 80 pounds. plus, I dont have energy and would be unfair for me to have a child. but--being an "aunt" to my friends kids has it's advantages...i can spoil the kids and then go home--LOL!
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Erika	Hi	#16	[url]	[-]
Member Posts: 102 05/17/09 04:10 PM	NLajoie wrote: miketrismegisto wrote: hey men 27 monhts in that hell, more of 40 grades celsius, what you do to dont feel the sweat and the fatigue , its very hard with ets you know It wasn't easy, and I would get headaches like crazy! Even post ETS, I stay physically active, and I think that helps... It's just I sweat a whole hell of a lot more and my clothes are drenched. I had to constantly change my clothes. Especially shirts and uniform tops. It was kind of weird when you went into my room and I had shirts hanging up to dry, but no one really noticed because everyone was sweating their asses off. The good thing is that we had Air conditions and showers. So I'd stay in the air condition as long as possible, it's absolutely the only thing that saved me. Of course the power would go off very often, so a lot of the time I was left to soak.. Bad thing about it was people think I'm anti-social because I'd be locked up in the A/C all the time. My first 12 month deployment was the worst as far as being outside in the heat with gear on. The second was a lot nicer, that I was able to work at nighttime and avoid the sun pretty much, except for when I had to eat or do physical training. I've adapted really well as far as sweating during physical work. The part that I can't adapt to is the wet feeling, and the soaked clothes. Sweating is ok but, it's not when your soaked! So everyone is drying up, and I'm still wet! As far as fatigue, I drank a lot of energy drinks.. They had stuff called "rip it's". I used to drink those whenever I wanted to get going. Else, I just stayed fatigued.. I'm auctually really fatigued writing this right now. I'm lucky to have gone during the later years of the conflict, as there were no air condition when it first started! I wouldn't wish that fate on anyone though! But I had to... I'll never fully be able to stand what ETS has done to me, and what gets me through is just taking everyday as it comes. I try to take 2 showers per day if I can and I need to have extra clothes available if I start soaking myself.. It's really though when you're working to change though! Also I make sure to drink enough water, knowing that I will be sweating more. NLajoie, I think it's amazing what you have done, considering the ETS. Whenever I'm totally overheating just running around at work, I will think of you and that will inspire me. I have been trying to get in better shape for the past 4 months, but honestly, since the surgery I can't jog more than 1/2 a mile, I used to be able to do at least two. Did you experience anything like this? You must be in pretty good shape so I thought I'd ask you.
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Erika		#17	[url]	[-]
Member Posts: 102 05/17/09 04:16 PM	I feel the same way...I can't exercise, I can't get in shape due to overheating and the inability to get my heart rate up. I have no soul, no feelings other than anger and sadness. I have Horner's so my face is deformed now. I am numb from one armpit down to my elbow because my surgeon obviously butchered me. I constantly smell from CS no matter what I do. It hasn't even been 3 years yet. Could I live another 10, or 20 like this? I don't think so either. I'm not sure that I want to die because in a way I feel like that's giving in. But I hear you, I'm done and I can't live like this anymore.
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NLajoie		#18	[url]	[-]
Member Posts: 73 05/17/09 05:11 PM	It's hard everyday... My family doesn't understand what is going on, because of what I've done these past few years. They think everything is fine with me, and they don't even remember that I had this surgery.. Now, I've been staying indoors most of the time just to avoid going out in the semi-heat. The temperature has been only around 80.. But I'm having CS.. They think I'm antisocial... but it's really because I want to keep my sweating at bay as much as possible, and the feeling is gross.. All the spots I sweat feel so unnatural, because they are.. Erika you're absoulutely right it's hard just doing work. I am in pretty good shape, I guess.. In my job it's been a neccessity to be in good physical condition, and we are tested on that.. The difference for me and being able to still be physically active is that, I expect to get drenched when I'm exercising. That in itself makes it more acceptable and less embarassing around others.. because they just see me as working out and getting sweaty.. However, when I'm just hanging out or doing simple things that normally wouldn't make a person sweat is when it is a huge problem. It's been about 6 years now since I've had the surgery, and I have noticed that as time goes on, my physical energy is diminishing. I've noticed mostly with running, I'm not able to be as efficient as I was 1- 2 after having the surgery.. I used to be a great athlete, and I can't believe I gave it all up just for ETS.. Along with working out, I watch what I eat, and that has helped a great deal. I'm still very lethargic and have little energy. So I take some pre workout energy supplements to get myself going. There is no doubt that having ETS has drastically hindered my physical abilities, and I wonder how much easier I could get results if I never went through with it.. I won't let ETS stop me from achieving my goals as far as physical fitness.. So far it's been rough, but I've done a decent job... All I can say is that, I'm hopeful for a cure. And if nothing else, help spread the word about how awful this surgery is.. Even though they do not understand, I always keep my family in my heart, they'd be lost without me, and that keeps me going.
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Chickpea		#19	[url]	[-]
Member Posts: 109 05/17/09 11:09 PM	... Last Edited By: Chickpea 06/07/09 09:55 PM. Edited 1 time.
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WetBoy		#20	[url]	[-]
Member Posts: 87 05/18/09 09:58 AM	fabbo wrote: i am 21 , and lost my previous overactive libido completly... worst thing that could happen. i also sweat so hard that i had to quit 3 jobs.,my clothes are wet all over after 20 minutes of work.every day is a pain. in deep depression . fabbo Fabbo, that totally sucks and I feel for you. I have been having some libido issues lately as well. Just another lovely side effect that is known but the "Doctors" don't tell you about. It pisses me off how they get away with this shit. How many Men would go through with this surgery if they knew it could impair fertility and sex drive. I know I wouldn't of. I would have run in the other direction! I guess that's why they keep it quite huh. Bastards! They will pay I promise!
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