Hi!
An ETS patient, I know, has recently got the diagnosis Post-sympathectomy Syndrome, because of several severe side effects from ETS.
The doctor, who gave the diagnosis, is a person with high reputation and experience.
This is the first time I have ever heard this diagnosis mentioned, and I have been on this forum for 6 years.
May-be I am dull, but so it is.
After a quick search on Google, I can see it mentioned a few times during the years, mostly connected to pain as a side effect from a sympathectomy, but also other side effects .
I can also se words used as post-sympathectomy neuralgia, post-sympathectomy phenomenon, the post-sympathectomy patient and so on.
The last one is interesting.
In my eyes, it tells about a person who has become a patient after the sympathectomy…..?
I wonder why the diagnosis post-sympathectomy syndrome is so rarely used?
The diagnosis is not official sanctioned, I believe, but that would be no problem to fix, if the surgeons wanted it.
It is no doubt this diagnosis has been well known for years.
Could it be, that the surgeons find it too stigmatizing, and from that reason refuse to use it?
It would probably not sound too good if the golden treatment ETS, gave people a syndrome they did not have before.
Does anyone have thoughts/knowledge about this?
Kari ![]()
