Thank you so much Carol for this forum, which I only discovered a day or so ago. So, where to start....
This is my hyperhidrosis and ETS story.
I am a 28 year old NZ woman. I was born with sweaty hands, feet and underarms. It didn't bother me until I got to my teens, when it became more severe and I naturally became more self-conscious. I tried both beta-blockers and that roll-on stuff that you put on before bed when I was about 14, but didn't have any luck. I tried the drugs for about a week or so and I tried the roll-on stuff only a couple of times.
I suffered through my teens and into my early twenties. I don't have to tell you guys what it was like. Palms dripping all over the desk at highschool and uni, shopping for shoes and clothes pretty darn difficult, the shame you feel when you have no choice but to shake someone's hand and they then wrinkle their nose in disgust or widen their eyes involuntarily and wipe their palm off, sometimes subtley, sometimes not. (Well, you insisted on shaking my hand! Grrrrr!) Not being able to hold hands. Having to use paper towels while using the phone. Having to wash my hands 30 times while trying to cook a meal. Feeling wet 90% of the time. Not being able to enjoy a lie-in in bed some days because the sheets would get soaked if I didn't get up. Wondering how the hell I would ever learn to drive (steering wheels are slippery...). The sheer agony of job interviews. Not being able to wear what you want to wear. Sweating uncontrollably on cold winter days and then feeling wet, hot and cold all at the same time. Being unable to take off a jacket in public because you know you have a puddle under each arm....and so on.
I think it was seeing me in tears before a job interview that finally made my mum realise something had to be done. I don't remember how it all happened, but at the age of 21, I went to see a surgeon. He had no people skills whatsoever but was said to be a good one. Typical damn hyperhidrosis - I sweated not a drop the day I met the surgeon! Anyway, it seems I got the usual spiel - the side-effects of ETS he mentioned were Horners, CS, risk of collapsed lung after surgery, gustatory sweating and reduced exercise capacity. He referred me to a previous patient of his who had had a successful ETS. I spoke to her on the phone and she reassured me. The idea of CS worried me. A lot. The previous patient admitted she seemed a little less fit than she used to be (she was a runner, I think) but otherwise, ETS had worked for her.
So I had my op. I woke up with dry palms and a slightly sore back/underarms (took about two weeks or so to get back to normal, i.e., no pain). That was the middle of 2001. Almost 8 years later, I still have dry palms, and no CS or other major side effects. My feet and underarms still sweat a lot, the same as before, but the surgery was never meant to fix that. The surgeon told me that there were good reasons to avoid trying to eliminate the underarm and foot sweating and I took his word for it. I don't know exactly what he cut - T1 and T2? I really am guessing here, just trying to remember what was in the written information he gave me.
I have felt unsure about posting here. Why have I emerged unscathed? Ok, I have some major sleeping problems at times and have only just learnt that my ETS could be responsible...but then, I am pretty sure my sleeping problems began well before I had my ETS.
So.....I guess I posted because I wonder if any of you know why the ETS works for some, and doesn't for others? What makes that difference? Did my nerve reknit a bit or something? Is it because my surgeon didn't try to stop my anxillary HH?
Cheers,
Chickpea



