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Chickpea |
Please help...what should I ask my surgeon? |
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Last Edited By: Chickpea 06/07/09 09:49 PM.
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PixieStitcher |
#1 | |||
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Hey Chickpea,
I would definitely start out by asking your doctor for the full report and pictures of your nerves before and after. If you feel that you are strong enough, then you do what you feel you need to do with your surgeon in terms of asking him all the questions and telling him about your feedback. I gave up with my doctor because they are all assholes anyway. They always have a way of dancing around the truth, restating their stupid "honeymoon" statistics, and that we're the oddballs for feeling the way that we do. I told him that his statistics are wrong and shouldn't be taken 2 weeks after the surgery because there are thousands of people reporting bad side effects on the ETS forum. He told me that people on the forum have "no lives". Can you believe that asshole? So again, if you feel strong enough, ask him what you feel like you need to, otherwise just get the report and pictures. -Pixie |
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ugyan |
#2 | |||
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Oh, dear...That is not good that you fell into this black hole we have down here, and Pixie's surgeon might have been right: we have no lives...(ok, I will
only speak for myself...) that's why we spend our time angry and moaning about what happened to us...If I would not have had the surgery I would not have
to be here.....in the first place, but let's not go there.
Anyway: please, do not get to involved. Just remember, that you were happy, wihtout any major side effects before you found out that the surgery is an experiment...but that lucky experiment had a good outcome for you. Do not get emotionally lost in it. It is a very unfortunate that you feel so ...invested in it, and I can tell you that it can poison your life if you let it affect you. Just remember, you are well! You do not need to be involved, at least not like this. In fact I think it woud be useful for you to not read about it (I can't believe I am saying this), because it can get out of control....and for what?! Will send you an email in a couple of days to see how you are doing. Take care. Mia |
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alvinsduckie |
just for the record | #3 | ||
He told me that people on the forum have "no lives" prior to ETS i had a full and functional life. I dont lay in bed 24/7 now..but I'm certainly dont have the health and vitality i did. Loss of emotion is one of my biggest issues. I could deal with all the pain and meds...if only I had my mind/heart back I'd ask if he was aware ETS was used in other countries for social phobias, and banned in 2 countries.
Last Edited By: alvinsduckie 01/21/09 08:05 PM.
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csmess |
#4 | |||
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Hi Chickpea,
I think it is very compassionate of you to take an interest in the plight of those of us who suffer as a result of this surgery and were not provided full/honest disclosure of the risks. And, despite your own happy outcome, I think you are justified in any anger you may have for misleading information you received prior to consenting to surgery. However, I suspect that confronting your surgeon with this information will be fruitless and mostly futile. There is no independent oversight of what gets disclosed to patients. The surgeons decide what gets disclosed and, like any other individual selling a product or service, they disclose the minimum amount of information they can get away with and nothing more. Although the spirit of informed consent dictates that they disclose all of the known risks, in practice, the laws allow them to pick and choose. The vast majority of surgeons performing this procedure have decided not to disclosed many well established side effects such as decreased heart rate and widespread anhidrosis. If confronted in court with this lack of disclosure, they would simply state that those side effects are not "clinically important" and most juries will side with the surgeons because society has deemed physicians to be the only "experts" on these matters. Furthermore, they can pick and choose which studies they choose to cite. For example, if you confront your surgeon with a study where 40% of the patients regretted the surgery, he'll likely tell that his "personal experience" is much different. Or, he might, as many surgeons do, claim that his technique is superior to other surgeons and he gets better results. He doesn't have to prove it. He's the surgeon and 99% of society will accept his claims without question. Some surgeons will look you straight in the face and make claims that defy fundamental physical laws. For example, most surgeons fail to advise patients that a common outcome includes the complete loss of the ability to perspire on nearly one-third of the body -- including the head which is the body's main radiator. I've seen ETS surgeons go on record with the utterly absurd claim that this result does not hamper the body's ability to cool itself. That claim can be proven false in an experiment a twelve-year-old could understand. But, hey, they're the "experts" and I'm just some whiny patient. The laws of physics be damned. Anyway, I'm rambling. I don't want to discourage you from your mission. I just want you to prepare yourself for the denial and scoffing you will likely encounter. Not all surgeons are smug, insufferable know-it-alls who believe that laymen are incapable of understanding the science underlying the treatments they administer, but a lot of them are. So, don't be too upset or surprised if your protestations are met with rolling eyes and dismissals.
Last Edited By: csmess 01/21/09 11:26 PM.
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Chickpea |
#5 | |||
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Last Edited By: Chickpea 06/07/09 09:50 PM.
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alvinsduckie |
#6 | |||
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hey chickpea =)
it's been banned in Taiwan on people under age 20 (21?) there are many studies prior to 2001, i think this OP was *born* in the late 1800's , altho dont quote me there ;-) I have to admit, i wanted (and did) give my surgeon the benefit of the doubt when all my friends said "dont do it"...but I've now learned dr's are only human. In this day and age we see on the news stories of mothers who murder their own children, police who taze and beat the elderly or disabled, and members of churches having sex with children. nothing is certain anymore, probably never was...but ETS did open my eyes to a whole new world that isnt 100% bad or good. it is both. |
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ugyan |
#7 | |||
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Alvinsduckie, the world was never good or bad for me, but this is an entirely new take on the saying the we are all human...or something like that. There is an
unwritten - and in this case written oath - that serves as a foundation of the patient-doctor relationship. The doctor swears NOT TO DO HARM. That kind of
....codified trust and agreement can not be violated without undermining the tenets of human relationships and society as we know it.
I can not resign myself to the fact that it is all within human nature. Corruption, greed etc might be, but here, we are talking about something else!!! You can not go an alter people, you can not go on and take away something that is essential and defines that human being. Your passion, your motivation and drive, the ability to have your heart overflow with emotion and have these experiences is an innate quality in all of us an makes life what it is, makes life worth living.... For someone to take that away, in full knowledge of the consequences of what they are doing is a crime of the worst kind. In fact, it is one definiton of EVIL. Some might not have such a strong view on this, but I am fully aware of the changes in me that resulted from this surgery (physiological, cognitive!!!! and emotional). I have still not reconciled myself to the thought of living disconnected ...from everything and feeling like a zombie....and I am not sure not sure I want to be. I was a writer with 5 books published (no, I am not boasting, but I think the context is important) before the surgery. Most of it poetry, but also prose. Trust me, the most importnat 'organ' you can have when you 'connect' with reality in a profound way, is your HEART, then the rest comes in and allows you to observe, to link things in an intuitive way that feels right....or something like that. If you have a look at what the consequences of lobotomy are, you wil be astonished at the similarity between the results of ETS and Lobotomy. That's what I am talking about. |
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