Can anyone tell me anything good about ets?? All I hear is negative
0 Kudo
Add Reply
New Topic
New Poll
- ETS
- Photo Album
- Side Effects
- If You Are Considering Having ETS....
- Member ETS Stories
- Stem Cell
- Clamp Removals
- Reversals ( Nerve graft surgery)
- Reversal Stories
- Medication and other remedies.
- Hyperhidrosis / Excessive Sweating
- Health In The News
- Links We Use
- Legal Matters
- Off Topic
- Blushing & Flushing
- Library
- Australia
- Japan
- Norway
- Spain
- Sweden
- Taiwan
- United States
anyone actually happy with this surgery??
| Author | Comment | |||
|---|---|---|---|---|
 morehaven |
anyone actually happy with this surgery?? |
Lead | ||
|
Posts: 3 10/18/06 09:48 PM |
|
|||
|
|
||||
|
Dripping Silver |
Re: anyone actually happy with this surgery?? | #1 | ||
|
Member
Posts: 4653 10/18/06 10:32 PM Administrator |
Go to any surgeon's website. That's where you'll find happiness.
|
|||
|
|
||||
|
kldm64 |
Re: anyone actually happy with this surgery?? | #2 | ||
|
Member
Posts: 300 10/19/06 08:20 AM |
The positives are that you will have dry hands after the procedure. In reality, that is the only positive and the outcome you are wanting. The draw back is the side effects that you can encure. Those can outweight the positive outcome you get. I work in sales so having dry hands is very nice when I attend meeting and conferences. However, I deal with CS now and that can be a pain to deal with. I can usaully wear a cotton t-shirt under my shirt and that helps alot. My biggest trigger to CS is during the summer when it's hot outside. I sweat alot more than I used to. There are some people that get the dry hands and don't have much in the way of side effects. The problem is, nobody really knows for sure what side effects, if any, you will have after ETS. It's a roll of the dice.
|
|||
|
|
||||
|
csmess |
Re: anyone actually happy with this surgery?? | #3 | ||
|
Member
Posts: 1186 10/21/06 09:55 AM Administrator |
Hi morehaven,
Yes, there are people who are happy with the outcome of the surgery. The surgeons will tell you that those people make up the vast majority of patients. What they don't tell you is that they collect those rosy statistics right after the surgery or in the first year or so after surgery. When you ask the same people five years after surgery, the percentage of people who are satisfied is much lower. But, the most important thing you need to know is that the surgery doesn't cure hyperhidrosis, it just moves it to different locations on your body. If you choose to have the surgery, make sure you are fully prepared to spend the rest of your life dealing with hyperhidrosis of the trunk, groin and/or legs. That's the deal. Some people would rather sweat like crazy in those places than the original location. You'll likely have to wear additional layers of underwear to soak up the sweat. You'll have to be very choosy about what colors you wear so that the sweat stains from the displaced hyperhidrosis don't show. Whatever you do, don't go into the surgery with the belief that it will make you sweat like a normal person. It won't. There are a lot of other unhealthy and nasty side effects that you might suffer as well. You can read about them here and in the medical literature. I hope you find a way other than surgery to cope with your condition. Good luck. |
|||
|
|
||||
|
morehaven |
Re: anyone actually happy with this surgery?? | #4 | ||
|
Posts: 3 10/21/06 04:33 PM |
I think I need to clarify that I have already had ETS, I got it done about 4 years ago. I only had it done for blushing, I had alot of underarm sweating but the deodorant "maxim" could cure that. I worked in a hot kitchen that was around 90 degrees when I had the surgery so every single day I would come home with my shirt soaking wet. I eventually started to get kidney stones because I would get dehydrated so much at work. The surgery did nothing for my blushing so I basically had the surgery and had no positives out of it, all I got was alot of sweating. I was just wondering if someone out there actually was happy with having the surgery. I guess no one is. I'm not happy with it but I don't get embarrased when I sweat so much it soaks through my undershirt and completely soaks both of my shirts. I've learned to live with it and I really don't care about it anymore. I live in Florida so my shirt gets soaking wet all the time. I've gotten over the blushing as well, my face gets red but oh well, I use to feel like people would be staring at it but I know there not and now I just dont care anymore. I wish I had waited a couple of years and I would not have had the surgery. You can't let sweating alot embarass you, I would have people at work ask me my I would sweat on my back so much and at first I was embarrased and now I just tell them cuz it's hot and I sweat alot, who cares.
|
|||
|
|
||||
|
csmess |
Re: anyone actually happy with this surgery?? | #5 | ||
|
Member
Posts: 1186 10/21/06 07:05 PM Administrator |
morehaven,
Well, it sounds like you have a healthy attitude about your situation. Sorry to have lectured you. I assumed you were someone considering the surgery. I, too, have overcome the embarrassment from the CS sweat stains. I haven't, however, learned to deal well with the constant discomfort being drenched all the time. That still pisses me off to no end. Not being able to sweat from my head also causes me problems. How about you? Can you sweat from your head? Also, I'm curious as to whether you feel you were adequately warned by your surgeon regarding the frequency and severity of the side effects. Most of us here are justifiably angry about being mislead regarding the side effects of this surgery. Do you feel your surgeon was honest and forthright with you prior to surgery? |
|||
|
|
||||
|
morehaven |
Re: anyone actually happy with this surgery?? | #6 | ||
|
Posts: 3 10/22/06 06:33 PM |
I can only sweat from the top part of my chest and down. I can't sweat on my face anymore but I really don't notice it all that much. As far as being properly warned I don't think I was either. The Dr. faxed us over a bunch of testimonials that were all positive and they said on the internet website there was only a 50 percent chance of CS. It wasn't until we drove 10 hours to Miami, got to the hospital, and I was in the room waiting to go into surgery that the Dr. came in and said that I WOULD have CS and that it would be terrible. I remember he told me it would be really bad and since I lived in Florida that was going to make it worse. After planning the trip for over a month and driving all that way and getting to the hospital I don't think there was anything the Dr. could have said at that point that would have prevented me from having the surgery. I think it is a little late to warn someone right before the surgery. I remember I heard nothing but positives on the phone and on the website but right before surgery is the only time the Dr officially warned me of all the negatives of the surgery. For the most part I have pretty much forgotten about the surgery and the sweating has just gotten to be a routine part of my life that I deal with. I didn't mean to sound harsh I know alot of people find it hard to deal with. I don't like it and I wish I didn't have the surgery but there is nothing I can do about it now. I'm also a police officer now and I have to wear long pants, 25 lbs of gear, and a have bullet proof vest that makes anyone sweat alot. All that mixed in with living in Florida really sucks but we all have to learn to live with choices we make, even the bad ones.
|
|||
|
|
||||
|
csmess |
Re: anyone actually happy with this surgery?? | #7 | ||
|
Member
Posts: 1186 10/22/06 08:33 PM Administrator |
Holy crap. Bad CS in Florida, working as a police officer and being able to suck it up and just deal with it. I admire the hell out of that. Several years ago I had a long conversation with an ex-cop in Maryland who had given up the force after ETS because of the CS and his inability to deal with the heat. He was going back to school hoping to land a desk job so he didn't have to be in the heat all day.
Anyway, thanks for posting here. It's inspiring to hear about someone dealing well with a bad situation. We've managed to talk quite a few people out of the surgery and your story will help in the cause. Take care. |
|||
|
|
||||
|
songboy1234 |
satisfaction | #8 | ||
|
Member
Posts: 863 11/04/06 04:21 PM |
It seems there are 2 general patterns of sweating that can emerge post ETS. Pattern I is loss of all sweating above the nipple line. Pattern II is the same, except retaining head and face sweating. Pattern II appears to be associated with ETS not involving the T2 ganglion.
Retaining head sweating and vascular control in the head is more likely to result in a satisfied ETS customer, it seems. Why any surgeon would mess with T2 to treat palm sweating is not known. |
|||
|
|
||||
|
alvinsduckie |
Re: satisfaction | #9 | ||
|
Member
Posts: 1405 11/05/06 01:36 AM |
Quote: (I had T4-5) this is my situation. I can still sweat on my face and head...although it seems to pour quickly now instead of gradually building up 
|
|||
|
|
||||
|
hamster45154 |
Re: anyone actually happy with this surgery?? | #10 | ||
|
Posts: 4 11/08/06 07:08 PM |
Hello everyone, My ETS procedure was done on June 27th 2003 at the Cleveland Clinic in Weston FL by Dr. Somnath Nair. I couldn't be happier with the results. Post op was completely pain free. Only one night stay at hospital. Was given excellent care. Have had HH since birth. Have been using tap water Iontopherisis for the last 16 years to stop the severe palmar HH. Now - I have warm, dry hands even in the HOT summer Florida climate and I don't have to electrocute or drug myself to get those results anymore! I think this forum is very negative re: ETS and I have not had that experience so I wanted to get a "happy ending" posted. I am glad that I had all the information (good and bad) to consider before going through with the procedure. After hearing all the horror stories posted here I almost chickened out.. I am so happy that I went with my own research and gut feelings. ETS has worked for me! I am "normal" now (whatever that is), and don't have to troll these sites anymore. I can go live my life !! Good luck to anyone out there still debating all the pros and cons. I got a month off work and I sat on the beach with a good book! Yay for me! serious inquiries only may email me at hamster45154@yahoo.com
|
|||
|
|
||||
|
lilmcgil45 |
Re: anyone actually happy with this surgery?? | #11 | ||
|
Posts: 8 11/13/06 06:50 PM |
I posted this back in May..........
I had ETS done in May of 2001 by Dr. Reisfeld in Beverly Hills Ca. It was for palmer HH. I was clamped at the T2 level. Since my ETS I have had very good results for the last 5 yrs. My hands are dry and very comfortable now. I couldn't be happier about that. I have some GS, but only on my scalp and neck after I eat anything with sugar (even ketcup) or spicy food. The GS is not noticable to others, and stops as soon as I am done eating. I have read about all the side effects people have, and I have none of them, ie: fatigue, severe CS, etc, etc....... I also sweat above the nipple line like normal......my hands will even seat a little when it is very hot at work. The only negative side effect I have is my feet sweat allot more than before ETS. They are dry when I am relaxed and alone, but if I got out wearing sandals and it is hot, they sweat allot. I have learned to live with it, and feel lucky that this is my only bad side effect. I have seen all the forums related to this subject, and heard all the arguing (on some of them) and was pleasantly surprised that "melinar" was able to post of her 5 yrs of positive results without being attacked like on some of the other forums. How refreshing! That is why I am replying here.......I am looking for people who really want to learn from others on the subject of ETS, and not just scream and yell at other posters. I am sorry Melinar has returning sweat to her hands. She had posted that she always felt like the sweat would come back....I have not really given it a thought in the last few yrs. right now I feel like my results will not change, seeing as I have not one new side effect. I was 45 when I has ETS. I realize there are way more people with bad side effects that post on these boards, so I want to make sure people know there are sucessful ETS stories out there............I guess we will never know how many. I welcome any questions or comments. Thanks for reading Lil |
|||
|
|
||||
|
7soft5ball |
Re: anyone actually happy with this surgery?? | #12 | ||
|
Member
Posts: 29 11/13/06 09:55 PM |
Help! I am 45 and had ets for facial sweating last week. This web site has me freaked out! I'm thinking I should call tomorrow and have this reversed. Today was my first day of CS. My back was wet. I was thinking this is better than my head dripping sweat. I always looked like I had taken a shower when I had any stress. Somebody talk to me.
|
|||
|
|
||||
|
csmess |
Re: anyone actually happy with this surgery?? | #13 | ||
|
Member
Posts: 1186 11/13/06 10:32 PM Administrator |
Hi Softball,
Do you know if you had your nerves clamped or cut? If they were cut, there is no way to reverse the procedure. If they were clamped and you can have the clamps removed and you may be able to reverse the effects to some degree. As to whether sweating excessively on the trunk is better than sweating on your head, you have to decide for yourself. The surgery should be called "hyperhidrosis displacement surgery" because that is the overall effect in the majority of cases. The trunk and lower limb sweating for me is tens times worse than my original problem. I consented to a surgery that was advertised to cure my hyperhidrosis not just move to other locations. But that's just me. Anyway, I wouldn't let the other stories here freak you out. You may or may not experience some of the other bad side effects, but there's no point worrying about that right now. You need to consider your current situation. One piece of advice though...if your surgeon tells you that the CS will become less pronounced with time, don't believe it. Fall is here and it's pretty cool most places. If your CS is bad now, it will probably be really bad in summertime. Get yourself into a hot, stuffy room and see how your body reacts. That will give you an idea of how your body will react to the summer heat. |
|||
|
|
||||
|
7soft5ball |
Re: anyone actually happy with this surgery?? | #14 | ||
|
Member
Posts: 29 11/13/06 10:48 PM |
I had the clamping procedure. Maybe if I can get in within a month the nerve won't be too heavily damaged. My doctor was very up front. He said you will have CS. He even told me he was doing a reversal for someone. I asked him if he had many people wanting reversals and he said no. He did say that the majority of people unhappy with their ets were the people who only had facial blushing. I thought I could understand that because if they didn't have sweating before of course they would hate CS. I just thought that I have been hiding sweat for 30 yrs. and to me it seemed that it would be easier to hide body sweat than on your head. You can always change clothes and look dry again but you can't always dry your hair off where ever you go. I don't want to be sitting in a puddle of sweat though! have you ever heard of someone having a reversal within one month?
|
|||
|
|
||||
|
csmess |
Re: anyone actually happy with this surgery?? | #15 | ||
|
Member
Posts: 1186 11/13/06 11:02 PM Administrator |
Yeah, I've talked to a few people who had a reversal within a month. Most saw some improvement early on, but I don't know how it turned out for them over the long term.
Regardless, you should do the hot room test. My life is an endless series of inter-day clothes changes, absolute dread of the summertime and, yes, sitting in puddles of sweat. Seriously, if I go to a barbecue in the summer or I'm sitting in a warm, stuffy room, I leave a sweat stain and sometimes a puddle behind on the chair. I usually have to wear two layers of underwear to prevent the sweating from soaking through my clothing. If you're like me, you'll discover that large sweat stains on your shirt and your pants are just as embarrassing as sweat on your brow with the added bonus of being twice as uncomfortable. Anyway, try to assess your situation as soon as possible and get the clamps out if the CS is bad. It doesn't get easier to live with over time. Good luck. |
|||
|
|
||||
|
Dripping Silver |
Re: anyone actually happy with this surgery?? | #16 | ||
|
Member
Posts: 4653 11/14/06 12:24 AM Administrator |
Mess, being it's only been a week since the surgery, could this be rebound sweating? Or would rebound sweating have already appeared earlier than this?
|
|||
|
|
||||
|
csmess |
Re: anyone actually happy with this surgery?? | #17 | ||
|
Member
Posts: 1186 11/14/06 07:56 AM Administrator |
Carole,
I don't know what you mean by "rebound" sweating. |
|||
|
|
||||
|
Dripping Silver |
Re: anyone actually happy with this surgery?? | #18 | ||
|
Member
Posts: 4653 11/14/06 10:41 AM Administrator |
Sorry, I must have called it the wrong thing. What I mean is that some people soon after ETS have one final big rush of sweat and then it goes away within a day or two.
|
|||
|
|
||||
|
7soft5ball |
Re: anyone actually happy with this surgery?? | #19 | ||
|
Member
Posts: 29 11/14/06 11:51 AM |
I can't take this kind of chance. I have already called my doctor to schedule the reversal. At least I can say I tried. My husband has been so supportive of me-it breaks my heart!to drag him through surgery last week and now this! At least I now have other people who understand this condition. I've never had anyone to talk to before that understood or believed how upsetting HH can be.
|
|||
|
|
||||
|
csmess |
Re: anyone actually happy with this surgery?? | #20 | ||
|
Member
Posts: 1186 11/14/06 01:05 PM Administrator |
Carole,
Oh yeah, I've heard of that but it didn't happen with me. But, softball said the sweating was on her back, so it's must be CS. The "rebound sweating" is sweat in the denerved area. Softball, Good luck. Check our reversals forum. There are a few people who have reported their progress after clamp removal. |
|||
|
|
||||
Add Reply
- ETS
- Photo Album
- Side Effects
- If You Are Considering Having ETS....
- Member ETS Stories
- Stem Cell
- Clamp Removals
- Reversals ( Nerve graft surgery)
- Reversal Stories
- Medication and other remedies.
- Hyperhidrosis / Excessive Sweating
- Health In The News
- Links We Use
- Legal Matters
- Off Topic
- Blushing & Flushing
- Library
- Australia
- Japan
- Norway
- Spain
- Sweden
- Taiwan
- United States
